Sunday, April 24, 2011


I decided to go through all my new drugs and discuss what they do for me and how much I like them. Some of the meds I use seem really helpful while others I use only because my doc tells me to. I assume similar genomes would have similar experiences although genome is only one factor in how CF affects someone. Anyway, my genome is Double Delta F508.

Pulmozyme is probably my single most favorite medicine! I have read on other blogs and forums that some people don't seem to notice the affects of Pulmozyme. Some people even chose to try Mucomyst instead. This amazes me because I feel the affects of Pulmozyme more than any other medicine I take. If I miss one dose of Pulm I notice a huge difference the next day. And when I resume taking Pulm I notice I feel back to normal by the next day. In fact if there was only one thing I could do for my lungs I would choose Pulm. I love it that much. I should so be a spokesperson for them.

I will forewarn you this next paragraph will be TMI so if mucus grosses you out skip to the next one. As a CFer my mucus is very very thick. When I was non compliant with meds in the past I had mucus so thick that it would hold a nice circular shape after I spit it out. I call it the brain consistency (I told you it would be TMI) because it looks like a little brain. I started taking Pulm twice a day and my mucus can't form a ball now if it wanted to. It changed the consistancy so much that it even changed the sound of my cough. I no longer have that nasty hacking cough, but rather a regular sounding cough. I don't know how well I explained that, but a CFer will know what I am talking about.

With that being said, when I have a bad infection I still get brain mucus despite the use of Pulm which means I need some strong antibiotics.

P.S. You know you are a CFer if you can write a whole blog about mucus consistency while eating breakfast!

For the lazy reader, which by the way I am not judging you :)

1. I feel a drastic change in my mucus upon use and an equally drastic change if I forget even one dose.
2. Makes such a big difference that it changes the sound of my cough.
3. It only takes about 10-15 minutes

1. For me none! This is my favorite medicine!!

**Disclaimer: I am a CFer, not a Dr so this is just my experience using this medicine. It may or may not be the same for you. If you are interested in Pulmozyme talk to your Dr. I think it is important for CFers to be their own advocate and discuss new treatment with their Drs. I think my Drs may dread when I come in because I am always asking them a million questions about meds on the market, trials, and meds in the pipeline. Ha***

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