It seems that every few months something happens that prevents me from getting my meds. Sometimes I will admit it is partially (or fully) my fault. Like the time I needed HTS, but the pharmacy ran out. I probably should have put in the order before I was really low of HTS vials. Other times I really had no control over the issue like when my insurance suddenly said I was never insured by them despite having the same insurance for almost 10 years!
Well, it has happened again. I started to realize I was running low on my HTS and Albuterol so I called in my meds. I get my meds form an online pharmacy so I have to wait for them to be delivered. The lady said it would be shipped "one day delivery" so I assumed it would arrive the next day. This is new as it has always been a few days and you could get overnight for an extra fee. So when the package didn't arrive the next day I just assumed (that was my first problem right there!) it would arrive the nextfollowing day since I did not pay the extra fee. The next day it didn't arrive and I started to worry. The problem is that the pharmacy is on Eastern time which is a three hour time difference so their office closes at 3 (my time) and mail doesn't arrive until 6 my time. By the time I realized the package did not arrive my pharmacy had been closed for over three hours.
I called the pharmacy first thing this morning. Apparently, my Advair can not be filled until next week so they did not send any of my meds. They were waiting to send them all together. I have about 3 extra Advair left over from pregnancy that I did not need to use, but have no extra Albuterol and HTS. I wish they would have told me because I really did not even need to fill Advair. So my meds are arriving tomorrow (except Advair) which means tonight I will not have any Albuterol or HTS. Sigh. Yes, it was partially my fault. I should have called yesterday so they would have straightened everything out and I would have gotten the shipment today. I should not have assumed the package would arrive. I should have learned my lesson by now. Apparently I am a slow learner.
Showing posts with label Hyper-tonic Saline. Show all posts
Showing posts with label Hyper-tonic Saline. Show all posts
Thursday, May 23, 2013
Saturday, April 23, 2011
Hyper-tonic Saline 7%
I have recently added a lot to my new regiment for health. I really wish I had done all of this years ago, but honestly I thought I was fine and healthy (I have always worked full time since college, IVs once a year, and I am able to do everything everyone else can do with the exception of maybe mountain climbing) so I never felt I needed to add more. It's 20/20 vision. Had I known then how much better I could feel I would absolutely have added a lot more to my regiment. Oh well.
I decided to review one new med per blog entry because I can be wordy and it will make it easier for people to find the meds that actually apply to them. So today I am reviewing Hyper-tonic Saline. Oh and I don't know if similar genomes react similar, but for the record I am double delta F508 which is the most common type of CF.
If I use a flutter I am good at getting a lot of mucus out of my lungs, but anyone that uses a flutter knows it is a lot of work. I usually cough very hard and am tired at the end of my treatment. All other CPT is almost useless in getting mucus out for me. Now with the addition of HTS I do not even need to try! I use HTS and within a minute I am coughing and coughing and best of all PRODUCING! The HTS causes the mucus to come up and out of the lungs much easier and I can say with 100% confidence that its an amazing addition to my CPT. I really don't have to work at all! I always follow HTS with my flutter just to really get everything out. When I use HTS which is only weekends and evenings I cough up TWICE as much and except for the time invested it is no more work. So I am a huge supported of HTS.
Now HTS is not perfect and so here I will mention the cons.It can be irritating. When I first started using it I found it very irritating and could only do it for a few minutes. I decided to start with a diluted version and gradually used it for longer at stronger concentrations. To this day I still get mild throat irritation, but it goes away soon after I stop the med. Also, if you get bleeds it can make you bleed more often, but I am not a bleeder so I have not had this problem.
I have actually been thinking about upping the saline ratio and trying HTS 9% to see if it is even better. I will update you if/when I try it.
For lazy readers I will compile and easy to read pro/con list to all my meds/treatment reviews
Pros:
1. Makes coughing mucus out of the lungs SO much easier. Almost effortless.
2. I produce twice as much mucus as compared to CPT without HTS.
3. It is easy and only takes between 10-15 minutes. Well worth it in my opinion.
Cons:
1. Can be irritating and you may have to work up to a full dose over time.
2. Can increase bleeds, but I am not a bleeder so no worries there for me.
**Disclaimer: This review is my personal experience with the medicine. We all know every CFer is different, even those with the same genome, so please talk to your Dr about your illness and any meds you are taking. Also, be your own advocate if one of the meds sounds like a medicine you would like to try bring it up at your appointment and see what they think**
I decided to review one new med per blog entry because I can be wordy and it will make it easier for people to find the meds that actually apply to them. So today I am reviewing Hyper-tonic Saline. Oh and I don't know if similar genomes react similar, but for the record I am double delta F508 which is the most common type of CF.
If I use a flutter I am good at getting a lot of mucus out of my lungs, but anyone that uses a flutter knows it is a lot of work. I usually cough very hard and am tired at the end of my treatment. All other CPT is almost useless in getting mucus out for me. Now with the addition of HTS I do not even need to try! I use HTS and within a minute I am coughing and coughing and best of all PRODUCING! The HTS causes the mucus to come up and out of the lungs much easier and I can say with 100% confidence that its an amazing addition to my CPT. I really don't have to work at all! I always follow HTS with my flutter just to really get everything out. When I use HTS which is only weekends and evenings I cough up TWICE as much and except for the time invested it is no more work. So I am a huge supported of HTS.
Now HTS is not perfect and so here I will mention the cons.It can be irritating. When I first started using it I found it very irritating and could only do it for a few minutes. I decided to start with a diluted version and gradually used it for longer at stronger concentrations. To this day I still get mild throat irritation, but it goes away soon after I stop the med. Also, if you get bleeds it can make you bleed more often, but I am not a bleeder so I have not had this problem.
I have actually been thinking about upping the saline ratio and trying HTS 9% to see if it is even better. I will update you if/when I try it.
For lazy readers I will compile and easy to read pro/con list to all my meds/treatment reviews
Pros:
1. Makes coughing mucus out of the lungs SO much easier. Almost effortless.
2. I produce twice as much mucus as compared to CPT without HTS.
3. It is easy and only takes between 10-15 minutes. Well worth it in my opinion.
Cons:
1. Can be irritating and you may have to work up to a full dose over time.
2. Can increase bleeds, but I am not a bleeder so no worries there for me.
**Disclaimer: This review is my personal experience with the medicine. We all know every CFer is different, even those with the same genome, so please talk to your Dr about your illness and any meds you are taking. Also, be your own advocate if one of the meds sounds like a medicine you would like to try bring it up at your appointment and see what they think**
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