Tuesday, September 17, 2013

Vertex Trials

I was officially rejected by Vertex! Of course, I was really upset at losing out on the chance to be a part of the study and the chance of getting access to potentially beneficially CF meds. However, after thinking about how everything played out I am actually glad I was not chosen for the study for a few reasons.

First, I am relieved that I can still nurse my daughter because she was not going to give up "boo boo" without a HUGE fight. It didn't help that she was (is) in the middle of getting her molars and all she wants to do is nurse.all.the.time!!!

Second, I desperately needed antibiotics from that last cold. I am back on Cipro and Bactrim which is usually my magic combo. I would not have been able to start the antibiotics right before starting the study. I am hoping this will help me get healthier so that when (if?) the drugs do become available I can get the most benefit from them.

Lastly, I found out at clinic on Monday that our clinic will be doing another Vertex trial for DDF508 in the near(ish) future! If all works out well I will try to get on that study unless they reject me again...


  1. I hope you are feeling better now on the meds. I just got caught up with your blog. Congrats on the new house. I can UNDERSTAND about all this moving. We moved into a new house with Alayna in August and it really was CRAZY!!!! Doing anything with an infant is 10 times harder than just you and your significant other. Anyways, I hope you are adjusting to the move and you are getting back to 100%.

    1. I agree that anything with an infant is 10x harder!! Thanks for checking in, I am feeling better now that I am on abx!