Sunday, October 12, 2014

Where We Started

I havent updated in a few months. I am currently without a computer and trying to type without a keyboard is challenging to say the least. However, I do want to update.

My last post life was turning around after a grueling 18 months of endless setbacks. I felt I was finally getting a hint of my old life back and started, just started, to feel some hope for the future with my husband and daughter. Oh, but life is cruel and less than 2 months later I am back to my lowest lung function, 30%.

About two weeks ago after finishing another round of antibiotics I started waking in the morning with extreme lung spasms. The spasms were so bad that I would be on the floor, coughing, choking, and throwing up unable to function until my lumgs calmed down again up to an hour later. I knew it wasnt an infection because once ,y spasms would stop I would be fine the rest of the day. I went to the doctor and he believes I was experiencing acid reflux at night that was actually going into my lungs causing the extreme discomfort.

The good news is after one dose of antacids my horrific spasms ceased. However, according to my home FEV meter my lung function hasnt changed. You win some you lose some, I guess.

2 comments:

  1. Ah crap. I'm sorry that really sucks. I can relate with the lung spasms. I used to get them every morning until I finally found Atrovent.
    I've been reading the CF and Healthy blog and am seriously considering ordering some Cellgevity. It's just so expensive.

    Here is a link. http://www.cfandhealthy.com/blog/reaching-new-highs

    What do you think?

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  2. I am not sure! I have heard mixed reviews about cellgevity. Let me know if you try it and what you think of it!

    Glad you calmed the lung spasms, they are super annoying!

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