I wish I could say CF has no effect on motherhood, but as we all know CF is a huge part of our lives and so of course it isn't going to quietly step aside for the birth of a child. Luckily, most of the ways it negatively impacts life has no negative effect on Kaylee although I am sure the dynamics keep changing as the child grows older. Here are the 4 biggest annoyances with CF while trying to mother.
So all new moms are tired and sleep deprived, it comes with the territory. The thing mothers don't tell you when they warn you that you will never sleep again is that you get a mothering high which makes you able to function off basically no sleep. I swear if for any other reason I didn't get more than 2 hours sleep at a time for a month I would be dead. Seriously, I would die! Somehow motherhood makes you a little bit like superwoman and I am still alive. Okay, back too CF and lack of sleep. So everyone says sleep when baby sleeps. Great advice except you have to live life too. You have to eat (and you know we really need to eat!) and you need to shower (trust me on this) and you need to stare at your baby for several hours a day (because hell you made something pretty amazing so why not!). These are all things ALL women deal with, but tag on a few hours of treatments and pretty much every hour your baby is asleep you are busy! I would get at least 2 more naps a day if it wasn't for treatments. *yawn*
I can't tell you how many times I sat down to a meal, popped my enzymes, was about to eat and little princess decided she was pretty hungry as well. I have no idea the negative effects of taking enzymes and then not eating, but as of now I am still alive and my intestines haven't died off so I guess it is okay. I now take half a dose when I start a meal and then if it seems like I can eat most of it before little princess needs me I take the rest.
This is my least favorite. So when I was pregnant many CF women told me their babies didn't even flinch when they coughed since they were so used to it in the womb. Not so, with little Kaylee. Her little startle reflex got a lot of use during the first few weeks. Eventually she wouldn't startle when she was on me and coughed, but would startle if someone else was holding her. My uneducated theory is that she could feel my large pre-cough inhale and prepared for it, and when others were holding her it caught her by complete surprise. Now at 5 weeks for the most part she ignores my cough. I even do my treatments with her nearby, but every once in a while when she is sleeping on me and I cough she will let out a little whine or startle. Poor baby!
I know I had a fourth when I started writing this, but somehow it escaped me. I blame my forgetfulness on the sleep deprivation...
Click here for Part 2 and here for Part 3 here.