We have been social distancing for a full 2 months now. It is amazing to think how much our lives and the world has changed in 2 months time...

I have been wanting to write about my post Trikafta life, but I am finding the words so hard to find. It is so hard to describe how much my ...

I haven't written in a while. For so long CF was taking over every aspect of my life. I didn't want to dedicate more time to CF and ...

I haven't been blogging in a while and after my transplant evaluation I felt like I needed a break. CF felt like it was taking over my w...

The FDA approved  Vertex's triple!!! I realize I have been mia recently, but I am still alive and well!

I have been putting this entry off for a while. Partly because I have been busier with the nicer weather, but also because I just wanted to ...

To start with Day 1 go here . I woke up Wednesday and turned to my husband and said, "I am over it. It was fun, but now I want to go ...