I have done a few "Day in the Life" posts over the years and I figured that this crazy time in life might be a good time to do ano...

Dear Kaylee, You are 8 years old today. 8 short years and yet it feels like a lifetime. How could it be that just a little over 8 years ag...

We have been social distancing for a full 2 months now. It is amazing to think how much our lives and the world has changed in 2 months time...

I have been wanting to write about my post Trikafta life, but I am finding the words so hard to find. It is so hard to describe how much my ...

I haven't written in a while. For so long CF was taking over every aspect of my life. I didn't want to dedicate more time to CF and ...

I haven't been blogging in a while and after my transplant evaluation I felt like I needed a break. CF felt like it was taking over my w...

The FDA approved  Vertex's triple!!! I realize I have been mia recently, but I am still alive and well!