My CF Story
Interviews with CF Moms
Saturday, July 7, 2018
I have been on Symdeko for 10 weeks as of today!! 10 weeks!! I meant to write an update at 4 weeks, but time got away from me as it often d...
Thursday, June 7, 2018
The End Of Kinder
There are exactly 5 days of kindergarten left. I will spare you all the talk of, "I can't believe how fast..." because if the...
Thursday, May 3, 2018
One Week Of Symdeko
I received Symdeko 2 weeks ago, but when I received it I still had some Orkambi left. I was desperate to try Symdeko, but also felt guilty t...
Friday, April 20, 2018
The last time I updated I was in the middle of a 2 week (turned into 3 week) course of Zosyn. Without too many boring details I went in afte...
Tuesday, April 3, 2018
Sorry for the delay in updating about the post hospital drama. In order to keep this from turning into a novel I will give a quick and conde...
Friday, March 30, 2018
Bad Clinic Appointment and ICU
My CF likes to keep me on my toes and for no obvious reason my last clinic visit (one week ago) was an utter disaster. Weight was down (just...
Thursday, March 29, 2018
CF College Scholarships
We all know that CF can come with an insurmountable amount of challenges. Navigating all of those challenges on your own for the first time ...
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