Inhaling Hope
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Sunday, January 12, 2020

The Initial Trikafta Changes

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I haven't been blogging in a while and after my transplant evaluation I felt like I needed a break. CF felt like it was taking over my w...
1 comment:
Monday, October 21, 2019

Trikafta

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The FDA approved  Vertex's triple!!! I realize I have been mia recently, but I am still alive and well!
1 comment:
Friday, May 10, 2019

Transplant Evaluation Day 4

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I have been putting this entry off for a while. Partly because I have been busier with the nicer weather, but also because I just wanted to ...
1 comment:
Friday, May 3, 2019

Transplant Evaluation Day 3

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To start with Day 1 go here . I woke up Wednesday and turned to my husband and said, "I am over it. It was fun, but now I want to go ...
Thursday, April 25, 2019

Transplant Evaluation Day 2

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**Start here for Day 1** Tuesday was much shorter (which means a much shorter blog post too...whew! I had to start the day fasting ag...
Tuesday, April 23, 2019

Transplant Evaluation Day 1

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My evaluation started on a Monday, which is standard for Stanford. It was the day I was the most stressed about because the schedule looked...
2 comments:
Friday, April 12, 2019

Pre-Transplant Evaluation Concerns

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So I spent the past 4 days at Stanford getting a lung transplant evaluation. For me, the hardest part about going to the evaluation is that ...
1 comment:
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Inhaling Hope
I am in my mid-30s and living with Cystic Fibrosis. My blog follows my journey of ttc, pregnancy, and motherhood while trying to navigate the scary and unpredictable world of Cystic Fibrosis.
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