Getting ready to list for transplant has made me feel a strong urge to document more of my daily life with Kaylee. Just in case. I know that...

This was a busy week CF wise for me. As of Thursday I officially had my doctor's send a request on my behalf for a transplant appointmen...

I am in my second year of being a Girl Scout troop leader. The first year there was a steep learning curve, but this year I feel like I am i...

Christmas and New Year came and went and despite being hooked up to IVs (Avycaz) it was probably my favorite Christmas. Kaylee is young enou...

I was sitting in the infusion chair waiting for my port to be accessed by the nurse she asked about any crazy see effects I have ever had fr...

The title say it all: CF is weird! I went to clinic Monday and coming off a pretty horrendous cold I figured my numbers would be low(ish). I...

There are certain experiences we have as a kid that through the lens of the parent is so radically different that watching your child live o...