Inhaling Hope
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Sunday, December 23, 2018

The Time My Tongue Turned Black

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I was sitting in the infusion chair waiting for my port to be accessed by the nurse she asked about any crazy see effects I have ever had fr...
Sunday, December 16, 2018

CF is Weird

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The title say it all: CF is weird! I went to clinic Monday and coming off a pretty horrendous cold I figured my numbers would be low(ish). I...
2 comments:
Thursday, November 29, 2018

Mr Sharpy

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There are certain experiences we have as a kid that through the lens of the parent is so radically different that watching your child live o...
Monday, November 26, 2018

Expectations

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It is human nature to try set goals and work towards achieving them. Nobody want to remain stagnant in any aspect of their lives: relationsh...
Saturday, November 24, 2018

Smoke and IVs

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If you watched the news last week you may have noticed there were some catastrophic fires on the West Coast that completely devastated comm...
Sunday, October 21, 2018

Skin Sensativities Solved!

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My skin has a way of baffling the entire medical community with it's absolute refusal to accept any type of adhesive to touch it for an...
1 comment:
Sunday, October 14, 2018

Overdue Update

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You guys, I went MIA for so long that now I don't even know how to catch everyone up. (I know I owe some people e-mails and I promise I ...
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Inhaling Hope
I am in my mid-30s and living with Cystic Fibrosis. My blog follows my journey of ttc, pregnancy, and motherhood while trying to navigate the scary and unpredictable world of Cystic Fibrosis.
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