My skin has a way of baffling the entire medical community with it's absolute refusal to accept any type of adhesive to touch it for an...

You guys, I went MIA for so long that now I don't even know how to catch everyone up. (I know I owe some people e-mails and I promise I ...

I have been on Symdeko for 10 weeks as of today!! 10 weeks!! I meant to write an update at 4 weeks, but time got away from me as it often d...

There are exactly 5 days of kindergarten left. I will spare you all the talk of, "I can't believe how fast..." because if the...

I received Symdeko 2 weeks ago, but when I received it I still had some Orkambi left. I was desperate to try Symdeko, but also felt guilty t...

The last time I updated I was in the middle of a 2 week (turned into 3 week) course of Zosyn. Without too many boring details I went in afte...

Sorry for the delay in updating about the post hospital drama. In order to keep this from turning into a novel I will give a quick and conde...