I received Symdeko 2 weeks ago, but when I received it I still had some Orkambi left. I was desperate to try Symdeko, but also felt guilty t...

The last time I updated I was in the middle of a 2 week (turned into 3 week) course of Zosyn. Without too many boring details I went in afte...

Sorry for the delay in updating about the post hospital drama. In order to keep this from turning into a novel I will give a quick and conde...

My CF likes to keep me on my toes and for no obvious reason my last clinic visit (one week ago) was an utter disaster. Weight was down (just...

We all know that CF can come with an insurmountable amount of challenges. Navigating all of those challenges on your own for the first time ...

Spring was starting to appear in all the trees and flowers, and skies filled with birds. But the chill of winter was lingering and as the da...

There has been a lot of change going on in our household. I hope to post more about those changes soon, but I wanted to start with one that ...