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Friday, September 30, 2016
Kaylee Chatter
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Now that Kaylee is four I figured she could graduate from "toddler talk" to "Kaylee Chatter." Same idea, but with the ne...
Wednesday, September 28, 2016
Preschool and Cystic Fibrosis
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When my husband and I toured preschools in the area, like all parents we had a checklist of things we were looking for. For us, the most imp...
Saturday, September 24, 2016
Enzyme Trouble
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I have been taking enzymes for 18 years now. (I was diagnosed at 14 which means I went 14 looong years without enzymes when I clearly needed...
Tuesday, September 20, 2016
One Year of Orkambi
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This post was incredibly hard for me to write. Like all matters related to CF there was no black and white with Orkambi, for me at least. I ...
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Saturday, September 17, 2016
Preschool
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My baby took her first real steps out into the real world this past week. On Tuesday September 13th, Kaylee, my husband and I walked hand in...
2 comments:
Monday, September 5, 2016
Six Years Later
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My husband and I just celebrated out sixth wedding anniversary this year. I know six years of marriage, living together for seven, does not ...
Saturday, September 3, 2016
Fighting Nausea Naturally
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Nausea and CF go hand in hand thanks to all the antibiotics used to treat chronic lung infections. Let's be honest, sometimes our antibi...
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