I have been on Symdeko for 10 weeks as of today!! 10 weeks!! I meant to write an update at 4 weeks, but time got away from me as it often d...

After three consecutive colds (after a winter of a million viruses) and a fun vacation that ended up leaving me more sleep deprived than a m...

Two weeks ago I had my CF clinic. I felt pretty confident going in because I had been swimming 5 days a week for 9 weeks at that point. I fe...

What is this? I had a good Dr appointment for the first time in what feels like forever?? Why yes, yes I did! So my appointment may not have...

I have found myself in a place that makes no sense at all. It all seems to get "curiouser and curiouser" in the worst kind of way....

Today was supposed to be the day I got my PICC pulled or was given a new set of meds, but of course with the PICC pulling itself out and my ...

I went to clinic yesterday after 10 days of IVs and I sort of wish I didn't bother to go because it was one huge disappointment. My weig...

I meant to post this Tuesday, but you know... I left the clinic yesterday feeling a little beat up. I hate getting bad news. My lung funct...

So I went to the CF doc yesterday and felt 600lbs lifted off my shoulders. I need to explain a misconception about pregnancy. You always h...

Yes, I am talking about plugs again. Seems to be the theme of my life at the moment! So I forgot to mention something the doctor told me t...

This is a quick update, but I had my 3 month appointment at the clinic today and wanted to report some good news. Here is the run down: we...