Inhaling Hope
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Showing posts with label Symdeko. Show all posts
Showing posts with label Symdeko. Show all posts
Saturday, July 7, 2018

Symdeko Update

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I have been on Symdeko for 10 weeks as of today!! 10 weeks!! I meant to write an update at 4 weeks, but time got away from me as it often d...
3 comments:
Thursday, May 3, 2018

One Week Of Symdeko

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I received Symdeko 2 weeks ago, but when I received it I still had some Orkambi left. I was desperate to try Symdeko, but also felt guilty t...
1 comment:
Friday, April 20, 2018

Symdeko

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The last time I updated I was in the middle of a 2 week (turned into 3 week) course of Zosyn. Without too many boring details I went in afte...
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Inhaling Hope
I am in my mid-30s and living with Cystic Fibrosis. My blog follows my journey of ttc, pregnancy, and motherhood while trying to navigate the scary and unpredictable world of Cystic Fibrosis.
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