Getting ready to list for transplant has made me feel a strong urge to document more of my daily life with Kaylee. Just in case. I know that...

Spring was starting to appear in all the trees and flowers, and skies filled with birds. But the chill of winter was lingering and as the da...

A little over five years ago you were placed on my chest and we became almost inseparable. We were together 24/7 for most of your early life...

I was laying in bed on a warm summer morning, fan whirring above me and sunlight pouring through the blinds. Kaylee, only a few days old, wa...

Kaylee: "How did you get CF mom?" Me: Very simple explanation of genetics. Kaylee: "So why didn't I get CF?" Me: ...

Thursday June 1st was Kaylee's last day of preschool. I have so many mixed feeling about this very short chapter in her life ending. She...

Dear Kaylee, There are some moments in motherhood that I wish I could freeze time and relive over and over. At this age right now, motherho...

I wrote a blog about our daily routine when  Kaylee was a newborn and again when  she was about one . I loved looking back at it and was sh...

"Remember when you were in the hospital?" Kaylee says from the backseat of the car. My grip on the steering wheel tightens and I ...

When my husband and I toured preschools in the area, like all parents we had a checklist of things we were looking for. For us, the most imp...

My baby took her first real steps out into the real world this past week. On Tuesday September 13th, Kaylee, my husband and I walked hand in...

I have been posting so many boring health updates so I wanted to share a cute story for a change. My four year old hates when I get IVs. S...

Most mornings I start my day at 5:20am. I crawl out of bed, pull on a bathing suit, puff my bronchodilator, grab a glass of milk and drive t...

The other day I was sitting with a good friend of mine chatting while sipping coffee (hers was decaf- she is trying for baby number 2). We h...

I plan on bringing you Part 2 of my port surgery, but I wanted to share the "joys" of chatterbox toddler. In Spanish class Kay i...

The start of June will always make me think of the start of our journey together... It was the last few moments of a Tuesday evening that ...

Kaylee is only starting to talk and has a limited vocabulary, BUT she makes it clear that CF is already a big part of her life. I hav...

Dear Kaylee Marie, You are 11 months old today! Only one more little month and you will be a whole year! I know it is probably because I am...

I am not in school anymore and since I had a late diagnosis I never had to deal with CF and elementary school. During junior high an...

When you become a parent you become a teacher. You spend those early days teaching baby to nurse, later you teach baby to sit up, eat on the...