This week my husband and I had a little get away. We went about an hour and a half Northeast to a historic old town to spend some time in na...

Hopefully, you have been hearing some really exciting news regarding Cystic Fibrosis and  medicine in general  lately. Science is beyond a...

As most of the CF world is probably aware of by now, the vertex drug developed for DDF508 has a good chance of becoming available to patient...

I am not superstitious, I really am not. And yet, I feel nervous writing this in case I jinx myself. In case, by writing these words for oth...

I have found myself in a place that makes no sense at all. It all seems to get "curiouser and curiouser" in the worst kind of way....

Sometimes doing treatments with kids is like a circus act! My daughter is wildly independent in her play which makes treatment time so much ...

Disclaimer:  I am in no way giving medical advice. I am not a medical doctor and have no medical knowledge other than what my doctors have t...

Okay, so if all goes well it won't be ready until 2017. That just means we have to keep ourselves alive and well for another 6 years. I ...

Before I explain what this post is about I want to get one thing straight. I am not a hopeless optimist when it comes to CF cures/meds...in ...