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Wednesday, July 1, 2020
A Day in the Life- Coronavirus
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I have done a few "Day in the Life" posts over the years and I figured that this crazy time in life might be a good time to do ano...
4 comments:
Wednesday, June 24, 2020
8 Years Old
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Dear Kaylee, You are 8 years old today. 8 short years and yet it feels like a lifetime. How could it be that just a little over 8 years ag...
Thursday, May 14, 2020
2 Months of Isolation
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We have been social distancing for a full 2 months now. It is amazing to think how much our lives and the world has changed in 2 months time...
Wednesday, May 6, 2020
New Normal Post Trikafta
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I have been wanting to write about my post Trikafta life, but I am finding the words so hard to find. It is so hard to describe how much my ...
Tuesday, April 21, 2020
Everything Feels Backwards
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I haven't written in a while. For so long CF was taking over every aspect of my life. I didn't want to dedicate more time to CF and ...
Sunday, January 12, 2020
The Initial Trikafta Changes
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I haven't been blogging in a while and after my transplant evaluation I felt like I needed a break. CF felt like it was taking over my w...
Monday, October 21, 2019
Trikafta
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The FDA approved Vertex's triple!!! I realize I have been mia recently, but I am still alive and well!
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